Pediatric Certificate Program Presentations, Projects, and Publications

Abadi M, Workneh R, Kukora S, Perez K, Valentine G, Barbut G et al. The Power of Professional Clinical Ethicists in Low- and Middle-Income Countries: An Ethiopian Perspective. Am J Bioeth 2025; 25: 95–98.

Abayneh M, Rent S, Ubuane PO, Carter BS, Deribessa SJ, Kassa BB et al. Perinatal palliative care in sub-Saharan Africa: recommendations for practice, future research, and guideline development. Front Pediatr 2023; 11: 1217209.

Acharya K, Rholl E, Malin K, Malnory M, Leuthner J, Leuthner SR et al. Parent Health-Related Quality of Life for Infants with Congenital Anomalies Receiving Neonatal Intensive Care. J Pediatr 2022; 245: 39-46.e2.

Adams SY, Redford K, Li R, Malfa A, Tucker R, Lechner BE. Utility of do-not-resuscitate orders for critically ill infants in the NICU. Pediatr Res 2025; 97: 707–713.

Ahmed A, Afshan G, Irshad Khan R, Afzal B, Jamali S, Farooq N et al. Managing acute pain in HIV+/AIDS patients: knowledge and practice trends among emergency physicians of major tertiary care centers of a developing country. BMC Res Notes 2020; 13: 255.

Allhoff F, Borden SL (eds). Ethics and Error in Medicine. 1st edn Routledge, 2019 doi:10.4324/9780429266119.

Atar S, Şahinoğlu S. Tıbbi Olmayan Cinsiyet Seçimi: Yeni Teknolojiler – Teknolojik Gelişmeler ve Etik Tartışmalar. Türkiye Biyoetik Dergisi 2023; 10: 68–78.

Bailoor K, Valley TS, Kukora S, Zahuranec DB. Explaining the Process of Determining Futility Increases Lay Public Acceptance. Ann Am Thorac Soc 2019. doi:10.1513/AnnalsATS.201811-790OC.

Barrett C, Berrios C. Downstream Exclusion in Rural Rare Disease Precision Medicine Research. Am J Bioeth 2024; 24: 106–108.

Beck JC, Smith LD, Gordon BG, Garrett JR. An ethical framework for responding to drug shortages in pediatric oncology. Pediatr Blood Cancer 2015; 62: 931–934.

Bellieni CV, Taddio A, Linebarger JS, Lantos JD. Should an IRB approve a placebo-controlled randomized trial of analgesia for procedural pain in neonates? Pediatrics 2012; 130: 550–553.

Benghiac A-G, Garrett JR, Carter BS. Ethical issues in pediatric face transplantation. Pediatr Transplant 2017; 21. doi:10.1111/petr.13032.

Berkowitz I, Burgart A, Truog RD, Mancuso TJ, Char D, Lantos JD. Parents Demand and Teenager Refuses Epidural Anesthesia. Pediatrics 2020; 145: e20193295.

Berkowitz ID, Garrett J. Should the Brain Death Exam With Apnea Test Require Surrogate Informed Consent? Yes: The UDDA Revision Series. Neurology 2023; 101: 218–220.

Berkowitz I, Garrett JR. Legal and Ethical Considerations for Requiring Consent for Apnea Testing in Brain Death Determination. Am J Bioeth 2020; 20: 4–16.

Berrios C, Basey T, Bradley-Ewing A, Daniels-Young S, Lewis D, Feldman K et al. Black community member perceptions and ethics recommendations on epigenomic research. Clin Epigenet 2025; 17: 33.

Berrios C, McBeth M, Bradley-Ewing A, Schuetz N, Campbell A, Talebizadeh Z et al. Developing a community-led rare disease ELSI research agenda. Orphanet J Rare Dis 2024; 19: 23.

Berrios C, Neal S, Zion T, Pastinen T. Comparing Attitudes About Genomic Privacy and Data Sharing in Adolescents and Parents of Children Enrolled in a Genomic Research Repository. AJOB Empir Bioeth 2024; 15: 33–40.

Brunkhorst J, Lantos JD. Ethics and Medico-legal implications in delivery room emergencies. Semin Fetal Neonatal Med 2019; 24: 101029.

Brunkhorst J, Weiner J, Lantos J. Infants of borderline viability: the ethics of delivery room care. Semin Fetal Neonatal Med 2014; 19: 290–295.

Cakici JA, Dimmock D, Caylor S, Gaughran M, Clarke C, Triplett C et al. Assessing Diversity in Newborn Genomic Sequencing Research Recruitment: Race/Ethnicity and Primary Spoken Language Variation in Eligibility, Enrollment, and Reasons for Declining. Clin Ther 2023; 45: 736–744.

Carter B, Brockman M, Garrett J, Knackstedt A, Lantos J. Why Are There So Few Ethics Consults in Children’s Hospitals? HEC Forum 2018; 30: 91–102.

Carter Brian S null, Pitts Blaine B null, Linebarger Jennifer S null, Garrett Jeremy R null, Lantos John D null. Getting comfortable with death. Our answer to Belgium: palliative care for children is preferable to euthanasia. Mo Med 2014; 111: 384–385.

Carter BS, Lantos JD. Disclosing adverse events and near misses to parents of neonates. Semin Perinatol 2019; 43: 151182.
Carter BS, Willis T, Knackstedt A. Neonatal family-centered care in a pandemic. J Perinatol 2021; 41: 1177–1179.

Chapman CR, Quinn GP, Natri HM, Berrios C, Dwyer P, Owens K et al. Consideration and Disclosure of Group Risks in Genomics and Other Data-Centric Research: Does the Common Rule Need Revision? The American Journal of Bioethics 2025; 25: 47–60.

Char DS, Lázaro-Muñoz G, Barnes A, Magnus D, Deem MJ, Lantos JD. Genomic Contraindications for Heart Transplantation. Pediatrics 2017; 139: e20163471.

Clark NA, Rodean J, Mestre M, Rangarajan HG, Samuels-Kalow M, Satwani P et al. Pandemic-Related Shifts in New Patients Admitted to Children’s Hospitals. Hosp Pediatr 2021; 11: e142–e151.

Clément de Cléty S, Friedel M, Verhagen AAE, Lantos JD, Carter BS. Please Do Whatever It Takes to End Our Daughter’s Suffering! Pediatrics 2016; 137. doi:10.1542/peds.2015-3812.

Cochran D, Saleem S, Khowaja-Punjwani S, Lantos JD. Cross-Cultural Differences in Communication About a Dying Child. Pediatrics 2017; 140: e20170690.

Cohen ASA, Farrow EG, Abdelmoity AT, Alaimo JT, Amudhavalli SM, Anderson JT et al. Genomic answers for children: Dynamic analyses of >1000 pediatric rare disease genomes. Genet Med 2022; 24: 1336–1348.

Cortezzo DE, Tingstad AW, Major-Kincade TL, Dworetz AR. When external factors limit care options for complex fetal and neonatal diagnoses. J Perinatol 2025. doi:10.1038/s41372-025-02394-y.

Crowe S, Sullivant S, Miller-Smith L, Lantos JD. Grief and Burnout in the PICU. Pediatrics 2017; 139: e20164041.

Deem MJ, Navin MC, Lantos JD. Considering Whether the Dismissal of Vaccine-Refusing Families Is Fair to Other Clinicians. JAMA Pediatr 2018; 172: 515.

Deem MJ, Navin MC, Lantos JD. Dismissal Policies for Vaccine Refusal—Reply. JAMA Pediatr 2018; 172: 1101.

Eckstein L, Garrett JR, Berkman BE. A framework for analyzing the ethics of disclosing genetic research findings. J Law Med Ethics 2014; 42: 190–207.

Ellis K, Linebarger JS. Ethical Issues in Pediatric Care at End of Life. In: Doka K, Jennigs B, Kirk T, Tucci A (eds). End-of-Life Ethics in a Changing World. Hospice Foundation of America: Washington, DC, 2023, pp 111–124.

Ellis K, Linebarger J. A Case of Refusing to Agree. In: Ragsdale LB, Miller EG (eds). Pediatric Palliative Care. Oxford University Press, 2020, pp 223–230.

Enck G, Condley B. Agent-Regret in Healthcare. The American Journal of Bioethics 2025; 25: 6–20.

Enck G, Condley B. Preserving Complexity of Agent-Regret in Healthcare. The American Journal of Bioethics 2025; 25: 40.

Fessell D, McKean E, Wagenschutz H, Cole M, Santen SA, Cermak R et al. Medical Improvisation Training for all Medical Students: 3-Year Experience. MedSciEduc 2020; 30: 87–90.

Freedle A, Nurse-Clarke N, Sember J, Bindeman J, MajorKincade T, Jones CJ. Unveiling the unseen: Exploring stigma in stillbirth care through interdisciplinary narratives. Death Stud 2025; : 1–11.

Garrett JR. The Child’s Right to an Open Future: Philosophical Foundations and Bioethical Applications. In: Nortjé N, Bester JC (eds). Pediatric Ethics: Theory and Practice. Springer International Publishing: Cham, 2022, pp 39–55.

Garrett JR. The ethics of animal research: exploring the controversy. MIT press: Cambridge (Mass.), 2012.

Garrett JR. Ethical considerations for biobanking: should individual research results be shared with relatives? Per Med 2012; 9: 159–162.

Garrett JR. Reframing the ethical debate regarding incidental findings in genetic research. Am J Bioeth 2013; 13: 44–46.

Garrett JR. Beyond Harms and Benefits: Rethinking Duties to Disclose Misattributed Parentage. Hastings Cent Rep 2015; 45: 37–38.

Garrett JR. Cracks in the Foundations of Engelhardt’s Bioethics. In: Rasmussen LM, Iltis A, Cherry MJ (eds). At the Foundations of Bioethics and Biopolitics: Critical Essays on the Thought of H. Tristram Engelhardt, Jr. Springer International Publishing: Cham, 2015, pp 215–230.

Garrett JR. Two Agendas for Bioethics: Critique and Integration. Bioethics 2015; 29: 440–447.

Garrett JR. The Poverty of Value Clarification: Using Ethical Theory to Critique and Transcend the ‘Givens’ of Clinical Ethics Consultation. Am J Bioeth 2016; 16: 48–51.

Garrett JR. Prologomena to Any Future Pediatric Bioethics. Am J Bioeth 2018; 18: 63–65.

Garrett JR. It’s the Idiom, Stupid: A Plea for Formal Rhetorical Analysis in Bioethics. Am J Bioeth 2019; 19: 67–69.

Garrett JR. Does Anyone Need to Regulate Parental Access to Fetal Genetic Information? Am J Bioeth 2022; 22: 28–30.

Garrett JR, Berkowitz I. Response to Open Peer Commentaries “Rethinking the Ethical, Legal, and Clinical Foundations of Informed Consent and Shared Decision-Making for Brain Death Determination”. The American Journal of Bioethics 2020; 20: W1–W5.

Garrett JR, Carter BS, Lantos JD. What We Do When We Resuscitate Extremely Preterm Infants. The American Journal of Bioethics 2017; 17: 1–3.

Garrett JR, Jotterand F, Ralston DC. The Development of Bioethics in the United States. Springer: Dordrecht, 2013 doi:10.1007/978-94-007-4011-2.

Garrett JR, Jotterand F, Ralston DC. The Development of Bioethics in the United States: An Introduction. In: Garrett JR, Jotterand F, Ralston DC (eds). The Development of Bioethics in the United States. Springer Netherlands: Dordrecht, 2013, pp 1–14.

Garrett JR, Lantos JD. Patient autonomy and the twenty-first century physician. Hastings Cent Rep 2011; 41: 3.

Garrett JR, Lantos JD. Marriage and the well-being of children. Pediatrics 2013; 131: 559–563.

Garrett JR, Lantos JD, Biesecker LG, Childerhose JE, Chung WK, Holm IA et al. Rethinking the “open future” argument against predictive genetic testing of children. Genetics in Medicine 2019; 21: 2190–2198.

Garrett JR, McNolty LA. Bariatric surgery and the social character of the obesity epidemic. Am J Bioeth 2010; 10: 20–22.

Garrett JR, McNolty LA. More than Warm Fuzzy Feelings: The Imperative of Institutional Morale in Hospital Pandemic Responses. Am J Bioeth 2020; 20: 92–94.

Garrett JR, McNolty LA. Principles over Propositions: Or, How to Reject Metaphysical Neutrality in Bioethics. Am J Bioeth 2021; 21: 31–34.

Garrett JR, McNolty LA, Wolfe ID, Lantos JD. Our Next Pandemic Ethics Challenge? Allocating ‘Normal’ Health Care Services. Hastings Cent Rep 2020; 50: 79–80.

Garrett JR, Moskop JC, Parker JC. Against Multiplying Clinical Ethics Standards without Necessity: The Case for Parsimony in Evaluating Decision-making Capacity. Am J Bioeth 2022; 22: 87–89.

Green RC, Goddard KAB, Jarvik GP, Amendola LM, Appelbaum PS, Berg JS et al. Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine. Am J Hum Genet 2016; 98: 1051–1066.

Greer D. Should the Brain Death Exam With Apnea Test Require Surrogate Informed Consent? No: The UDDA Revision Series. Neurology 2023; 101: 221–222.

Gross-Toalson J, Linebarger J. I Just Want to Feel Normal! In: Ragsdale LB, Miller EG (eds). Pediatric Palliative Care. Oxford University Press, 2020, pp 231–236.

Guillen U, Mackley A, Laventhal N, Kukora SK, Christ L, Derrick M et al. Evaluating the use of a decision aid for parents facing extremely premature delivery: A randomized trial. J Pediatr 2019; 209: 52-60.e1.

Gupta N, Dhingra B, Raha S, Meharda RP, Lewin S. Ethical Challenges and Guidance Related to Adolescent Pregnancy. Indian Pediatr 2024; 61: 482–485.

Gutiérrez HM, Nakashima Y, Derrington S, Lantos JD. ‘Take Out This Thing’: A Teen’s Decision About Removal of a Gastrostomy Tube. Pediatrics 2020; 145: e20191621.

Hansen K, Gladdis T, Kukora S. Parental mental health & well-being in the NICU: Addressing the surgeon general’s advisory. Semin Perinatol 2025; : 152111.

Hansen K, Kukora SK, Sherman A, Feldman K. Mental health in pregnancy complicated by fetal anomaly: depression screening and referrals in a single fetal care center. J Perinatol 2024. doi:10.1038/s41372-024-02118-8.

Harting MT, Munson D, Linebarger J, Hirshberg E, Gow KW, Malek MM et al. Ethical Considerations in Critically Ill Neonatal and Pediatric Patients. J Pediatr Surg 2023; 58: 1059–1073.

Heifner AL, Ortiz MM, Major-Kincade TL, O’Connor C. Parental Authority and the Weight of Assent: Navigating Moral Dilemmas in Adolescent End of Life Care. J Bioeth Inq 2025; 22: 235–241.

Hood-Patterson D, Carter BS. Accompaniment and Bearing Witness: The Path Through Liminal Spaces in Healthcare. Am J Hosp Palliat Care 2024; 41: 859–862.

Hood-Patterson RD. Radical Suffering, Callousness, and Child Abuse: Communal Responsibilities for Suffering and Advocacy within Cultures Abuse. Canadian Journal of Bioethics 2025; 8: 120–123.

Hood-Patterson RD, Wolfe I. Stewardship or Punishment? Ethical Analysis of Transplant Candidacy for a Child from a Low-Resourced Family. Am J Bioeth 2025; 25: 140–142.

Hotz KG, Silverstein A, Dalgo A. Novel Integration of a Health Equity Immersion Curriculum in Medical Training. J Med Humanit 2024; 45: 193–199.

House SA, Shubkin CD, Lahey T, Brosco JP, Lantos J. COVID-19 Trial Enrollment for Those Who Cannot Consent: Ethical Challenges Posed by a Pandemic. Pediatrics 2020; 146: e2020010728.

Huysman A, Patel M, Dieterich DT. Hepatitis B: the immaculate infection. Gastroenterol Hepatol (N Y) 2007; 3: 724–726.

Iftikhar S, Saleem S. Misrepresenting Female Doctors in Pakistan: How the “Doctor Bride” Phenomenon Causes Epistemic Injustice. ABR 2025; 17: 583–590.

Iftikhar S, Saleem S, Aziz I, Sana M. Experiences of medical and dental students of Pakistan during COVID-19 pandemic lockdown: a qualitative study. BMJ Open 2022; 12: e066442.

Ishtiaq A, Saleem S. Human Milk Banks in the Islamic Republic of Pakistan: One Step Forward and Two Steps Backward. Annals KEMU 2024; 30. doi:10.21649/akemu.v30i2.5773.

Janvier A, Lantos J. Ethics and Etiquette in Neonatal Intensive Care. JAMA Pediatr 2014; 168: 857.

Janvier A, Lantos J, Aschner J, Barrington K, Batton B, Batton D et al. Stronger and More Vulnerable: A Balanced View of the Impacts of the NICU Experience on Parents. Pediatrics 2016; 138: e20160655.

Jeong S, Knackstedt A, Linebarger JS, Carter BS. Moral Distress and Pediatric Palliative Care. Children (Basel) 2024; 11: 751.

Johnson L-M, Elliott A, Sawyer KE, Steuer KB, Levine DR. Beyond Mediation: A Toolkit Approach to Preventing and Managing Conflict with Patients and Families in Difficulty. The American Journal of Bioethics 2023; 23: 70–73.

Kane NJ, Cohen ASA, Berrios C, Jones B, Pastinen T, Hoffman MA. Committing to genomic answers for all kids: Evaluating inequity in genomic research enrollment. Genet Med 2023; 25: 100895.

Kania T, Schafer M, Caruso Brown AE, Olick RS, Lantos JD. Should a Teenager Be Allowed to Leave the Hospital AMA to Attend His Father’s Funeral? Pediatrics 2018; 141: e20170902.

Kazi U, Tariq S, Saleem S, Fareeduddin M. Clinical spectrum of admitted severely acute  malnourished children at the indus hospital Karachi: an evaluation of one year’s experience. Ann Jinnah Sindh Med Uni 2018; 4.

Khoo EJ, Lantos JD. Lessons learned from the COVID-19 pandemic. Acta Paediatr 2020; 109: 1323–1325.

Khoo EJ, Chan MY, Kutzsche S, Verhagen E. Balancing Ethics and Equity: Rethinking Commercial Milk Formula Industry Partnerships in Maternal and Child Health. Acta Paediatrica 2025; 114: 1548–1549.

Khoo EJ, Parameshwara N, Kutzsche S. Parents’ perceptions of bedside teaching. The Clinical Teacher 2019; 16: 497–501.

Khoo EJ, Schremmer RD, Diekema DS, Lantos JD. Ethical Concerns When Minors Act as Standardized Patients. Pediatrics 2017; 139: e20162795.

Khowaja-Punjwani S, Smardo C, Hendricks MR, Lantos JD. Physician-Nurse Interactions in Critical Care. Pediatrics 2017; 140: e20170670.

Kidszun A, Linebarger J, Walter JK, Paul NW, Fruth A, Mildenberger E et al. What If the Prenatal Diagnosis of a Lethal Anomaly Turns Out to Be Wrong? Pediatrics 2016; 137: e20154514.

Knapp B, Decker C, Lantos JD. Neonatologists’ Attitudes About Diagnostic Whole-Genome Sequencing in the NICU. Pediatrics 2019; 143: S54–S57.

Krenz C, Spector-Bagdady K, De Vries R, Kukora SK. Parents’ Perspectives on Values and Values Conflicts Impacting Shared Decision-Making for Critically Ill Neonates. Journal of Pediatric Ethics 2023; 3.

Krick JA, Rholl EL, Callahan KP, Harris KW, Weiss EM. Uncertainties in the NICU: a scoping review to inform a tailored taxonomy. J Perinatol 2025; 45: 713–725.

Kukora S, Gollehon N, Weiner G, Laventhal N. Prognostic accuracy of antenatal neonatology consultation. J Perinatol 2017; 37: 27–31.

Kukora SK, Branche T, Miller ER, Henner N, Kapadia V, Haward MF. Supporting parents’ emotional and mental health in the antenatal consultation. J Perinatol 2024. doi:10.1038/s41372-024-02156-2.

Kukora S, Firn J, Laventhal N, Vercler C, Moore B, Lantos JD. Infant With Trisomy 18 and Hypoplastic Left Heart Syndrome. Pediatrics 2019; 143: e20183779.

Kukora S, Gollehon N, Laventhal N. Antenatal palliative care consultation: implications for decision-making and perinatal outcomes in a single-centre experience. Arch Dis Child Fetal Neonatal Ed 2017; 102: F12–F16.

Kukora SK, Batell B, Umoren R, Gray MM, Ravi N, Thompson C et al. Hilariously Bad News: Medical Improv as a Novel Approach to Teach Communication Skills for Bad News Disclosure. Acad Pediatr 2020; 20: 879–881.

Kukora SK, Boss RD. Values-based shared decision-making in the antenatal period. Semin Fetal Neonatal Med 2017. doi:10.1016/j.siny.2017.09.003.

Kukora SK, Fry JT. Resuscitation decisions in fetal myelomeningocele repair should center on parents’ values: a counter analysis. J Perinatol 2022. doi:10.1038/s41372-022-01385-7.

Kukora SK, Laventhal N, Keefer PM, Firn JI. Transgressing Moral Imperatives: Ethical Stress, Virtues and Values Conflict in Pediatric Death. Pediatric Ethicscope 2018; 31: 38–50.

Kukora SK, Laventhal NT. Serious Communication in the Neonatal Intensive Care Unit: Evidence for Strategies and Training. In: Principles of Neonatology. Elsevier, 2024, pp 765–775.

Kukora SK, Leuthner SR. The Neonatologist’s Role in Prenatal Counseling. In: Denney-Koelsch EM, Côté-Arsenault D (eds). Perinatal Palliative Care. Springer International Publishing: Cham, 2020, pp 129–154.

Kukora SK, Mychaliska GB, Weiss EM. Ethical challenges in first-in-human trials of the artificial placenta and artificial womb: not all technologies are created equally, ethically. J Perinatol 2023. doi:10.1038/s41372-023-01713-5.

Kukora SK, Ryan K, Yan H, Clarke R, Arslanian-Engoren C, Pituch K. Development and acceptability testing of a tracheostomy decision support video for parents. PEC Innovation 2025; 7: 100412.

Kukora SK, Van Horn A, Thatcher A, Pace RA, Schumacher RE, Attar MA. Risk of death at home or on hospital readmission after discharge with pediatric tracheostomy. J Perinatol 2023. doi:10.1038/s41372-023-01721-5.

Kukora S, Keefer P, Pituch K, Firn J. Thematic analysis of interprofessional provider perceptions of pediatric death. J Pediatr Nurs 2019; 47: 92–99.

Kukora S, Krenz C, De Vries R, Spector‐Bagdady K. Serious news communication between clinicians and parents impacts parents’ experiences, decision‐making, and clinical care for critically ill neonates. Acta Paediatrica 2023; : apa.17084.

Kukora S, Laventhal N. Resident Attitudes on Ethical and Medical Decision-Making for Neonates at the Limit of Viability. Am J Perinatol 2015. doi:10.1055/s-0035-1565916.

Kukora S, Laventhal N. Choosing Wisely: Can past medical decisions impact the allocation of scarce ECMO resources? Acta Paediatrica 2016. doi:10.1111/apa.13457.

Kukora S, Laventhal N. Rock the Baby, Not the Boat: A Defense of Epidemiology-Based and Values-Based Shared Decision Making at the Margin of Gestational Viability. Am J Bioeth 2017; 17: 16–18.

Kukora S, Laventhal N, Arnolds M. Postponed Withholding: The Wrong Nudge. Am J Bioeth 2022; 22: 66–69.

Kutzsche S. The humanitarian legacy of Fe del Mundo (1911–2011) who shaped the modern child healthcare system in the Philippines. Acta Paediatrica 2019; 108: 1382–1384.

Kutzsche S, Nalliah S. William Aaron Silverman (1917–2004) was a Pioneer of Evidence‐Based Medicine and Advocate for Families and Children Born Preterm. Acta Paediatrica 2025; 114: 1122–1125.

Kutzsche S, Partridge JC, Leuthner SR, Lantos JD. When Life-Sustaining Treatment Is Withdrawn and the Patient Doesn’t Die. Pediatrics 2013; 132: 893–897.

Lantos JD, Caciki J, Garrett JR. One Exemption Too Many: The Case for Mandated CCHD Screening. The American Journal of Bioethics 2016; 16: 3–5.

Lantos JD, Carter B, Garrett J. Do Sociocultural Factors Influence Periviability Counseling and Treatment More Than Science? Lessons From Scandinavia. Pediatrics 2018; 142: S600–S602.

Lantos JD, Saleem S, Raza F, Syltern J, Khoo EJ, Iyengar A et al. Clinical Ethics in Pediatrics: An International Perspective. J Clin Ethics 2019; 30: 35–45.

Lechner BE, Kukora SK, Fiester A. The Ladder of Inference as a tool to reduce implicit bias in pediatric clinical practice. Pediatr Res 2024. doi:10.1038/s41390-024-03278-1.

Lechner BE, Kukora SK, Hawes K. Equity, inclusion and cultural humility: contemporizing the neonatal intensive care unit family-centered care model. J Perinatol 2024. doi:10.1038/s41372-024-01949-9.

Leeuwenburgh-Pronk WG, Miller-Smith L, Forman V, Lantos JD, Tibboel D, Buysse C. Are we allowed to discontinue medical treatment in this child? Pediatrics 2015; 135: 545–549.

Lin M, Rholl E, Andescavage N, Ackerman O, Fisher D, Lanzel AF et al. Improving Prenatal Palliative Care Consultation Using Diagnostic Trigger Criteria. J Pain Symptom Manage 2024; 67: e137–e145.

Linebarger J, Moreno MA. Pediatric Palliative Care. JAMA Pediatr 2019; 173: 1115.

Linebarger JS. Getting comfortable with death. When the beginning the end are close. Mo Med 2014; 111: 381–383.

Linebarger JS. Pregnancy Accompanied by Palliative Care. Perspect Biol Med 2020; 63: 535–538.

Linebarger JS. Including Goals of Care in Treatment Decisions-Meeting Them Where They Are Involves Moving. JAMA Pediatr 2023; 177: 760–761.

Linebarger JS, Ajayi TA, Jones BL. Adolescents and young adults with life-threatening illness: special considerations, transitions in care, and the role of pediatric palliative care. Pediatr Clin North Am 2014; 61: 785–796.

Linebarger JS, Johnson V, Boss RD, SECTION ON HOSPICE AND PALLIATIVE MEDICINE, Linebarger JS, Collura CA et al. Guidance for Pediatric End-of-Life Care. Pediatrics 2022; 149: e2022057011.

Linebarger JS, Tracewski M. Compassionate Extubation and Withdrawal of Life-Sustaining Therapies. In: Limbo R, Wool C, Carter BS (eds). Handbook of Perinatal and Neonatal Palliative Care. Springer Publishing Company: New York, NY, 2019 doi:10.1891/9780826138422.0019.

Major-Kincade TL, Tyson JE, Kennedy KA. Training pediatric house staff in evidence-based ethics: an exploratory controlled trial. J Perinatol 2001; 21: 161–166.

Major-Kincade T, Kim E, Price CA, Banerjee A, Franklin N, Castañeda Almendárez I et al. The Use of Biased Language in the Care of Seriously Ill Children: A Pilot Study. Am J Hosp Palliat Care 2025; : 10499091251345723.

Major-Kincade TL. Obstetric Racism, Education, and Racial Concordance. MCN Am J Matern Child Nurs 2024; 49: 74–80.

Malin KJ, Johnson TS, Brown RL, Leuthner J, Malnory M, White-Traut R et al. Uncertainty and perinatal post-traumatic stress disorder in the neonatal intensive care unit. Res Nurs Health 2022; 45: 717–732.

McInnis BJ, Pindus R, Kareem DH, Cakici J, Vital DG, Hekler E et al. Using dataflow diagrams to support research informed consent data management communications: participant perspectives. J Am Med Inform Assoc 2025; 32: 712–723.

McMann CL, Carter BS, Lantos JD. Ethical issues in fetal diagnosis and treatment. Am J Perinatol 2014; 31: 637–644.

McNolty LA, Garrett JR. For Whom the Burden Tolls: Gender and the Unequal Management of Fetal Risks and Parental Expectations. Am J Bioeth 2016; 16: 17–19.

McNolty LA, Garrett JR. Women’s Democratic Empowerment Matters for Child Health. J Law Med Ethics 2025; 53: 296–297.

Miller EG, Levy C, Linebarger JS, Klick JC, Carter BS. Pediatric palliative care: current evidence and evidence gaps. J Pediatr 2015; 166: 1536-1540.e1.

Mirza A, Mirza A, Major-Kincade T, Major-Kincade T, Harris N, Harris N et al. Moral Distress in Pediatric Residents: Mapping Experiences, Ethical Guidance, and Challenges in Navigating Ethical Conflicts. nib 2025. doi:10.1353/nib.2025.a967399.

Mishra R, Roumillat J, Kennedy K. (Ir)Relevance of Ethics Committees: The Continued Value of Hospital Ethics Committees in Programs with Professional Ethicist Staffing. The American Journal of Bioethics 2025; 25: 73–76.

Moore B, Garrett JR, McNolty LA, Murano MC. The Strange Tale of Three Identical Strangers: Cinematic Lessons in Bioethics. Hastings Cent Rep 2019; 49: 21–23.

Moore B, Lantos JD. Healthcare organizations and high profile disagreements. Bioethics 2020; 34: 281–287.

Morgan ME, Kukora S, Nemshak M, Shuman CJ. Neonatal Pain, Agitation, and Sedation Scale’s use, reliability, and validity: a systematic review. Journal of Perinatology: Official Journal of the California Perinatal Association 2020. doi:10.1038/s41372-020-00840-7.

Murano MC, Feldt MM, Lantos JD. Parental Concerns on Short Stature: A 15-Year Follow-Up. J Pediatr 2020; 220: 237–240.

Nallani R, Francis CL, Wagner AF, Brown JR. Management of Neonatal Airway Obstruction: A Point-Counterpoint Ethical Discussion. Otolaryngol Head Neck Surg 2024; 171: 599–602.

Nilan LM, Patel L, Moffatt ME, Linebarger JS, Sherman AK, Randell KA. Compassion Fatigue in Pediatric Emergency Department Staff. Pediatr Emerg Care 2019; 35: 777–781.

Olive AM, Finnsdottir Wagner A, Mulhall DT, October TW, Hart JL, Sherman AK et al. Nudging During Pediatric Intensive Care Conferences With Family Members: Retrospective Analysis of Transcripts From a Single-Center, 2015-2019. Pediatr Crit Care Med 2024; 25: 407–415.

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RASUL S, BASHIR MZ, SALEEM S, TAHIR S, RASHEED A, SABIR M. Assessment of Medical Professionalism among Students and Faculty Members of Shalamar Medical and Dental College, Lahore. Journal of Advances in Medical Education and Professionalism 2021; 9. doi:10.30476/jamp.2021.88433.1342.

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Rholl EL, Baughman KR, Leuthner SR. Withdrawing and Withholding Life-Sustaining Medical Therapies in the Neonatal Intensive Care Unit: Case-Based Approaches to Clinical Controversies. Clin Perinatol 2022; 49: 127–135.

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Riotte CO, Kukora SK, Keefer PM, Firn JI. Identifying the Types of Support Needed by Interprofessional Teams Providing Pediatric End-of-Life Care: A Thematic Analysis. J Palliat Med 2017. doi:10.1089/jpm.2017.0331.

Robins B, Booser A, Lantos JD. When Parents Have Misunderstandings About the Risks and Benefits of Palliative Surgery. Pediatrics 2018; 142: e20180482.

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Wolfe ID, Patel A, Kociolek LK, Fazal A, Jhaveri R, Lantos JD. Exploration and Ethical Analysis of Open-label Pediatric Vaccine Trials in a Pandemic. Clin Ther 2021; 43: e163–e172.

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Bailoor K, Valley TS, Kukora S, Zahuranec DB. Explaining the Process of Determining Futility Increases Lay Public Acceptance. Ann Am Thorac Soc 2019. doi:10.1513/AnnalsATS.201811-790OC.

Barrett C, Berrios C. Downstream Exclusion in Rural Rare Disease Precision Medicine Research. Am J Bioeth 2024; 24: 106–108.

Beck JC, Smith LD, Gordon BG, Garrett JR. An ethical framework for responding to drug shortages in pediatric oncology. Pediatr Blood Cancer 2015; 62: 931–934.

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Benghiac A-G, Garrett JR, Carter BS. Ethical issues in pediatric face transplantation. Pediatr Transplant 2017; 21. doi:10.1111/petr.13032.

Berkowitz I, Burgart A, Truog RD, Mancuso TJ, Char D, Lantos JD. Parents Demand and Teenager Refuses Epidural Anesthesia. Pediatrics 2020; 145: e20193295.

Berkowitz ID, Garrett J. Should the Brain Death Exam With Apnea Test Require Surrogate Informed Consent? Yes: The UDDA Revision Series. Neurology 2023; 101: 218–220.

Berkowitz I, Garrett JR. Legal and Ethical Considerations for Requiring Consent for Apnea Testing in Brain Death Determination. Am J Bioeth 2020; 20: 4–16.

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Brunkhorst J, Weiner J, Lantos J. Infants of borderline viability: the ethics of delivery room care. Semin Fetal Neonatal Med 2014; 19: 290–295.

Cakici JA, Dimmock D, Caylor S, Gaughran M, Clarke C, Triplett C et al. Assessing Diversity in Newborn Genomic Sequencing Research Recruitment: Race/Ethnicity and Primary Spoken Language Variation in Eligibility, Enrollment, and Reasons for Declining. Clin Ther 2023; 45: 736–744.

Carter B, Brockman M, Garrett J, Knackstedt A, Lantos J. Why Are There So Few Ethics Consults in Children’s Hospitals? HEC Forum 2018; 30: 91–102.

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Carter BS, Lantos JD. Disclosing adverse events and near misses to parents of neonates. Semin Perinatol 2019; 43: 151182.

Carter BS, Willis T, Knackstedt A. Neonatal family-centered care in a pandemic. J Perinatol 2021; 41: 1177–1179.

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Char DS, Lázaro-Muñoz G, Barnes A, Magnus D, Deem MJ, Lantos JD. Genomic Contraindications for Heart Transplantation. Pediatrics 2017; 139: e20163471.

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Clément de Cléty S, Friedel M, Verhagen AAE, Lantos JD, Carter BS. Please Do Whatever It Takes to End Our Daughter’s Suffering! Pediatrics 2016; 137. doi:10.1542/peds.2015-3812.

Cochran D, Saleem S, Khowaja-Punjwani S, Lantos JD. Cross-Cultural Differences in Communication About a Dying Child. Pediatrics 2017; 140: e20170690.

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Crowe S, Sullivant S, Miller-Smith L, Lantos JD. Grief and Burnout in the PICU. Pediatrics 2017; 139: e20164041.

Deem MJ, Navin MC, Lantos JD. Considering Whether the Dismissal of Vaccine-Refusing Families Is Fair to Other Clinicians. JAMA Pediatr 2018; 172: 515.

Deem MJ, Navin MC, Lantos JD. Dismissal Policies for Vaccine Refusal—Reply. JAMA Pediatr 2018; 172: 1101.

Eckstein L, Garrett JR, Berkman BE. A framework for analyzing the ethics of disclosing genetic research findings. J Law Med Ethics 2014; 42: 190–207.

Ellis K, Linebarger JS. Ethical Issues in Pediatric Care at End of Life. In: Doka K, Jennigs B, Kirk T, Tucci A (eds). End-of-Life Ethics in a Changing World. Hospice Foundation of America: Washington, DC, 2023, pp 111–124.

Ellis K, Linebarger J. A Case of Refusing to Agree. In: Ragsdale LB, Miller EG (eds). Pediatric Palliative Care. Oxford University Press, 2020, pp 223–230.

Enck G, Condley B. Agent-Regret in Healthcare. The American Journal of Bioethics 2025; 25: 6–20.

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Fessell D, McKean E, Wagenschutz H, Cole M, Santen SA, Cermak R et al. Medical Improvisation Training for all Medical Students: 3-Year Experience. MedSciEduc 2020; 30: 87–90.

Freedle A, Nurse-Clarke N, Sember J, Bindeman J, MajorKincade T, Jones CJ. Unveiling the unseen: Exploring stigma in stillbirth care through interdisciplinary narratives. Death Stud 2025; : 1–11.

Garrett JR. The Child’s Right to an Open Future: Philosophical Foundations and Bioethical Applications. In: Nortjé N, Bester JC (eds). Pediatric Ethics: Theory and Practice. Springer International Publishing: Cham, 2022, pp 39–55.

Garrett JR. The ethics of animal research: exploring the controversy. MIT press: Cambridge (Mass.), 2012.

Garrett JR. Ethical considerations for biobanking: should individual research results be shared with relatives? Per Med 2012; 9: 159–162.

Garrett JR. Reframing the ethical debate regarding incidental findings in genetic research. Am J Bioeth 2013; 13: 44–46.

Garrett JR. Beyond Harms and Benefits: Rethinking Duties to Disclose Misattributed Parentage. Hastings Cent Rep 2015; 45: 37–38.

Garrett JR. Cracks in the Foundations of Engelhardt’s Bioethics. In: Rasmussen LM, Iltis A, Cherry MJ (eds). At the Foundations of Bioethics and Biopolitics: Critical Essays on the Thought of H. Tristram Engelhardt, Jr. Springer International Publishing: Cham, 2015, pp 215–230.

Garrett JR. Two Agendas for Bioethics: Critique and Integration. Bioethics 2015; 29: 440–447.

Garrett JR. The Poverty of Value Clarification: Using Ethical Theory to Critique and Transcend the ‘Givens’ of Clinical Ethics Consultation. Am J Bioeth 2016; 16: 48–51.

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Garrett JR. Does Anyone Need to Regulate Parental Access to Fetal Genetic Information? Am J Bioeth 2022; 22: 28–30.

Garrett JR, Berkowitz I. Response to Open Peer Commentaries “Rethinking the Ethical, Legal, and Clinical Foundations of Informed Consent and Shared Decision-Making for Brain Death Determination”. The American Journal of Bioethics 2020; 20: W1–W5.

Garrett JR, Carter BS, Lantos JD. What We Do When We Resuscitate Extremely Preterm Infants. The American Journal of Bioethics 2017; 17: 1–3.

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Garrett JR, Lantos JD. Patient autonomy and the twenty-first century physician. Hastings Cent Rep 2011; 41: 3.

Garrett JR, Lantos JD. Marriage and the well-being of children. Pediatrics 2013; 131: 559–563.

Garrett JR, Lantos JD, Biesecker LG, Childerhose JE, Chung WK, Holm IA et al. Rethinking the “open future” argument against predictive genetic testing of children. Genetics in Medicine 2019; 21: 2190–2198.

Garrett JR, McNolty LA. Bariatric surgery and the social character of the obesity epidemic. Am J Bioeth 2010; 10: 20–22.

Garrett JR, McNolty LA. More than Warm Fuzzy Feelings: The Imperative of Institutional Morale in Hospital Pandemic Responses. Am J Bioeth 2020; 20: 92–94.

Garrett JR, McNolty LA. Principles over Propositions: Or, How to Reject Metaphysical Neutrality in Bioethics. Am J Bioeth 2021; 21: 31–34.

Garrett JR, McNolty LA, Wolfe ID, Lantos JD. Our Next Pandemic Ethics Challenge? Allocating ‘Normal’ Health Care Services. Hastings Cent Rep 2020; 50: 79–80.

Garrett JR, Moskop JC, Parker JC. Against Multiplying Clinical Ethics Standards without Necessity: The Case for Parsimony in Evaluating Decision-making Capacity. Am J Bioeth 2022; 22: 87–89.

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Greer D. Should the Brain Death Exam With Apnea Test Require Surrogate Informed Consent? No: The UDDA Revision Series. Neurology 2023; 101: 221–222.

Gross-Toalson J, Linebarger J. I Just Want to Feel Normal! In: Ragsdale LB, Miller EG (eds). Pediatric Palliative Care. Oxford University Press, 2020, pp 231–236.

Guillen U, Mackley A, Laventhal N, Kukora SK, Christ L, Derrick M et al. Evaluating the use of a decision aid for parents facing extremely premature delivery: A randomized trial. J Pediatr 2019; 209: 52-60.e1.

Gupta N, Dhingra B, Raha S, Meharda RP, Lewin S. Ethical Challenges and Guidance Related to Adolescent Pregnancy. Indian Pediatr 2024; 61: 482–485.

Gutiérrez HM, Nakashima Y, Derrington S, Lantos JD. ‘Take Out This Thing’: A Teen’s Decision About Removal of a Gastrostomy Tube. Pediatrics 2020; 145: e20191621.

Hansen K, Gladdis T, Kukora S. Parental mental health & well-being in the NICU: Addressing the surgeon general’s advisory. Semin Perinatol 2025; : 152111.

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