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ATHN 16: SEVENFACT for Bleeding Events in Hemophilia with Inhibitors
This study is being done for people: -Have a diagnosis of hemophilia A or B with inhibitors -Be 12 years of age and older...
This study is being done for people: -Have a diagnosis of hemophilia A or B with inhibitors -Be 12 years of age and older -Be willing and able to use a mobile application or a paper diary to document bleeding events and medication usage This study will involve collecting medical information from the medical records, telephone calls, and bleeding events and treatment records of participants. This study involves taking SEVENFACT as one normally would, as an injection into a vein occurring over several minutes, given at the time of a bleeding event. The goal of this study is to evaluate the safety of SEVENFACT when used to treat bleeding events in participants with Hemophilia A or B with inhibitors.
ATHN Transcends: A Study of the Safety, Effectiveness, and Practice of Treatment in People with Non-Neoplastic Hematologic Disorders
This study is being for done for people: • Diagnosed with Hemophilia • Be able to be in the study for about 15 years and talk to the study staff at baseline visit during your scheduled comprehensive clinic visit, every 3 months via phone or email, and yearly in person at your...
This study is being for done for people: • Diagnosed with Hemophilia • Be able to be in the study for about 15 years and talk to the study staff at baseline visit during your scheduled comprehensive clinic visit, every 3 months via phone or email, and yearly in person at your comprehensive clinic visit. The main purpose of this study is to look at the safety and effectiveness of the treatments used for people with non-neoplastic blood disorders .Being in this study may help researchers find better treatments for patients with bleeding disorders in the future.
Hemophilia: A study investigating inflammation and iron homeostasis
The primary objective of this study is to determine if there is an association of factor 8 or 9 activity with inflammatory markers, hepcidin, and iron stores in children and young adults with hemophilia A and B. Inclusion Criteria...
The primary objective of this study is to determine if there is an association of factor 8 or 9 activity with inflammatory markers, hepcidin, and iron stores in children and young adults with hemophilia A and B. Inclusion Criteria: • Less than 22 years of age • Able to comprehend English and/or Spanish • Participants must be diagnosed with Hemophilia A (Factor 8 deficiency) or Hemophilia B (Factor 9 deficiency) Being in this study will involve one study visit which will last approximately 20-30 minutes. The study visit can happen at the same time as the child regular clinic visit. The biggest risks from being in this study are bleeding and discomfort related to the blood draw. There may be direct benefit to being in this study: any iron deficiency discovered from study labs can be treated by the primary hematologist. By being in this study, children may help researchers find better treatments for patients with hemophilia in the future.